Status Epilepticus (“status”) occurs in about 50 per cent of people with LGS and is the term used to describe prolonged seizures without regaining consciousness between attacks. Status can occur with any type of seizure and is categorised as either convulsive or non-convulsive. Status can last from hours to days, in the case of non-convulsive status, even weeks or months. Factors which may lead to status include sudden withdrawal from medication, illness, fever and infections.
Status in children with LGS is most often non–convulsive. It is characterised by severe confusion, apathy or a “flat” mood, stupor or, at worst apparent dementia.
Inconspicuous muscle spasms and greatly impaired balance and co–ordination are usually evident. Conclusive status may ultimately lead to brain damage and death unless stopped quickly, usually with the administration of rectal valium. Some parents and carers learn to administer rectal valium at home. This option would need to be discussed with your doctor.