A Senate Inquiry into Epilepsy in Australia is underway, and people across the country are being invited to share their experiences. This is an important opportunity for the community to help shape future understanding, services, and support.

If epilepsy has affected you – directly or indirectly – your voice can help make a difference.

Submissions do not have to come from subject matter experts – your thoughts and opinions are valid. Anyone can contribute, including:

• People living with epilepsy
• Parents, carers, and family members
• Health and disability workers
• Researchers and community workers
• Educators, employers, and community members

If epilepsy has touched your personal or professional life in any way, your perspective is valid and welcome.

Epilepsy affects over 270,000 Australians, yet people continue to face challenges with diagnosis, treatment, access to care, education, employment, and social inclusion.

A Senate inquiry gives us all an opportunity to tell government what life with epilepsy is really like. This can influence:

• Fairer rules and systems
• Support where it’s needed most
• Getting help and services locally
• Better community understanding of epilepsy

Personal stories help decision-makers see beyond statistics and understand the real impact of epilepsy.